Everybody said that her pregnancy was ill-conceived and ill-advised. But who are we to judge her?
Mary (not her real name) lies in our ICU. Her 21-year-old body looks frail and debilitated, her skin is pale and sallow, and her breathing is irregular and shallow. Attached to her sick body are a number of tubes, catheters and monitors. The regular bleep and tracings in the monitor screen above her bed tells me that she is still alive, although she looks otherwise.
Mary was born with cystic fibrosis. This is an inherited disease caused by a defective gene that causes thick mucus plugging of small tubes and ducts, mostly affecting the lungs and the digestive system. Patients suffer with frequent lung infections, digestive problems, and usually succumb with respiratory failure or liver failure. The disease is fatal that many patients will die in their childhood and adolescence. However, in the past few decades, with the improvement of care, patients who made it through adulthood has an average lifespan of 35 years.
Mary’s childhood was anything but normal. She was in the hospital or doctor’s office so often more than she was in school. She was on medications constantly. She had known more doctors than childhood friends. She experienced more than her share of suffering and disease. But she had beaten the odds. Now, that she made it through 21 summers tells me that she is a fierce survivor.
But now, this pregnancy. Her family doesn’t want her to have this. Her doctors told her that her body may not be able to tolerate the additional stress of pregnancy and that it will be very high risk to continue. But she made up her mind that she will keep this child whatever the cost.
Due to developing problems and complications, she was admitted to the hospital’s maternity ward on her 32nd weeks of conception, where she was expected to stay for the rest of the pregnancy. However, after a few days in the hospital her condition worsened. Her liver function deteriorated and she went into fulminant hepatic failure. Mary slipped into coma. She was then transferred to our ICU.
Because her baby may get compromised further, we had no choice but to deliver the baby, even if it was barely 33 weeks old. Mary underwent an emergency caesarean section.
Now, 3 days after her baby’s delivery, Mary still remains in our ICU. She continues to be comatosed. As I stand beside her bed to examine her, I see the pictures of her newborn baby posted on the wall of her room. Being a parent, I cannot help but feel a twinge of sadness. Will she ever know that she brought forth a beautiful baby, premature, but otherwise healthy boy? Will she ever hear the yearning cry of her dear child? Will she ever see the sweet smile of her son? Will she ever hold her baby in her arms, the life that she fought for so dearly to bring to this world, even if it meant going against medical advice?
I just hope that someday this precious boy would be grateful and proud to the mother, he may never know. And may he appreciate and realize the challenges, the difficulty, the sacrifices her mother went into, to give him the gift of life. Yes, even in exchange of her life.
But wait. This is Christmas season. Time of miracles. Maybe there will be one here tonight.